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several doctors agreeing to see patients, but even though it is Title III,
there are no provisions for nutritional services including food or counseling
that I have been able to uncover. To overcome this, I solicit representatives
for supplies to at least give the patients something to try and use for
a limited time. We are also reaching out to some of the ministries here
that are active in HIV/AIDS support. We hope to work with the agency that
has Ryan White money to improve how they are currently disseminating their
grant funds and to also add a non-profit foundation at the clinic to help
cover patient needs."
Who is your best ally?
The medical staff she works with-- on the days that she is not available
in the clinic, they still keep nutritional services in mind. "They will
track a patient that I need to call to schedule an appointment with. Both
Dr. Jemsek and our physician assistant (PA) incorporate nutrition as part
of routine care for patients."
What differences exist
between current clientele and that of the HIV+ person in the early 1980s?
"Well, for the most part patients aren't dying as quickly. In the
80's I didn't know anything about BIA, DEXA or anabolic programs.
Wasting is still prevalent and unless a patient has access to some type
of body composition testing it may be overlooked. Nutritional status
of patients is still compromised and not necessarily well addressed in
all situations. The lipodystrophy syndrome has certainly made things
more interesting and complex - I see a lot more lipoatrophy with and without
central shifts than dorso-cervical relocation. Using the DEXA scan has
been interesting because even with facial/peripheral fat loss, there is
some degree of central shifting seen in a patient whose overall fat percentage
is very low. I counsel a lot more patients on diabetes and cardiac issues
also. Patients are more complex in that they can have 3 or more chronic
conditions going on at the same time - diabetes, hyperlipidemias, Hepatitis
C co-infections, osteoporosis etc."
Ms. Lichtner also notices
differences between men and women. The women tend to have more central
deposition than the men, and complain of increasing breast size, fat pads
behind the neck, etc. She does not see facial wasting as prevalent
in the female population. She also finds most of the females remain working
and are also caregivers.
Is someone involved
in program operation actively involved with the local HIV/AIDS Health Services
Planning Council? Yes. The PA that works for the clinic is currently
working with MAP. They have the Ryan White money for the Charlotte metro-area
- to improve the services they are supposed to provide.
Do you participate
regularly in HIV/AIDS networking groups? No, due to the fact that there
is little networking amongst the groups. There doesn't seem to be any interaction
or coordination between the support ministries and Ryan White funds - no
AIDS Service Organizations. Ms. Lichtner is active and supports RAIN (Regional
AIDS Interfaith Network) in Charlotte.
What have you found
to be most useful in helping to keep up with the current research on nutrition
and HIV? "I joined the HIV/AIDS Dietetic Practice Group (DPG) of the
American Dietetic Association - there is a quarterly newsletter and an
email listserv that keeps me abreast of hot issues. I also read the
Nutrition and Complementary Care DPG newsletter and use the Natural Medicine
database website to help wade through all the information on nutraceuticals,
etc. I scan the HIV Medscape website weekly and try to read NUMEDX
and HIV+Plus monthly. I find that going to seminars and discussing/networking
with other RDs, to find out what they do routinely, is also helpful."
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